Wednesday, July 9, 2014

Then and Now

Last year at this time Zane, Ava, I and her Nurse were in Seattle on this day to change out her feeding tube. It was quite the adventure. We left on Sunday July 7th our first leg of the journey taking us to Spokane WA. We packed up Ava and her room - 2 of everything and a weeks worth of food and trach care supplies, toys ect. It was a Subraban full of medical equipment. We were able to find a spot for each of us to sit and one bag each the rest was Ava.

We stopped in Missoula for gas and Wally world for some forgoton supplies. We learned not to set a full Ava up in the shopping cart, gave us back a rag full of food. Then off to Spokane where we had fun trying to find our motel, once found we unloaded and Zane and I went on a walk about to find food while the Nurse settled Ava in. 

We took off  bright and early the next morning for our winding trip to Seattle. It was a nice drive and we had little problem finding the Nexus Hotel, settled in, we got a little better at hauling everything to the room, food was found and Zane enjoyed some time in the Pool.

On the 3rd day we went to our Dr. appt. They said all was well, would consider putting in a Mic-Key G-tube our next visit to Seattle.  Since we didn't have any upcoming Seattle appt. they had a consult, and decided it would be possible to change out to the Mic-Key that day.

Zane hung out playing games, I and Ava got to go back into surgery where they cut and pulled out the old tube and put in the New Tube. I got to wear a pretty white suit. She cried when they pulled it out and was fine after they had put the new tube in. In less than 15 minutes we were in and out. I did request a spare tube set before we left just in case. 

We had time to spare so we headed over to the Ronald McDonald houses and visited with another Montana Family and took the Nurse on a tour of each of the houses and had supper at House C. It was off to our Motel and more swimming for Zane and a phone visit with the Landry's for me.

Blake was enjoying his first Boy Scout Camp at Camp Parson's in Washington with out us.

Flash forward to a 2014 and today's adventures included Speech therapy and OT for Ava, a visit to Farmers Market. Cub Scouts and YM for Blake and Zane -

Cub Scouts ended being called as only 3 boys showed up - Zane and Henry came back to the house for a short play date before taking him home.
 A year ago she was ventilator dependent - now look! No Vent and cruising the pews

Blake and Zane enjoyed playing with their Marshmallow Shooters earlier in the day.

Ready, Set,
We made these the other day - they snowed our lawn with Mini Marshmallows and have been having lots of fun with their own custom made shooters.

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